Unfortunatly, it appears that you are wrong. Like in AIDS, this disease is extremely degenerative. In AIDS patients, as their T-Cell count falls away to nothing the cancers and infections become uncontrollable. I believe it is fair to say that they are "dying" of AIDS or CGD because as time passes the effects of the disease become harsher and harsher. She, or anyone with either of these two diseases, understands that the disease will cause more infections or cancers and that one or a combination of them will be the certain cause of death. So they can't say "I'm dying of pnuemonia" because that doesn't make sense, and may not be the final cause of death.
I wouldn't wish this disease on anyone in the world. She is incredibly talented and gorgeous. Any genetic degenerative disease like this is awful, and I really hope there is research and development brewing to try and treat or cure this disease. If you read this Abby, try and stay positive and keep the fight alive.